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  <docDscr>
    <citation>
      <titlStmt>
        <titl>
			The Swiss Cancer Patient Experiences-2 (SCAPE-2) study
		</titl>
        <IDNo agency="DOI System">
			10.16909-DATASET-38
		</IDNo>
      </titlStmt>
	  
      <rspStmt>
        <othId role="Metadata and DDI creator" affiliation="Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland">
            Paillex, Soizick
        </othId>
      </rspStmt>
	  
      <prodStmt>
        <producer abbr="Unisanté" role="Data publisher">
          Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland
        </producer>  
		<copyright>
			(c) 2023, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland
        </copyright>		
        <software version="7.5.7" date="2018-06-29"> <!--Logiciel utilisé pour la production du document de balisage-->
          Notepad ++
        </software>
      </prodStmt>
	  
      <verStmt>
        <version type="" date="">
          Version 1.0 (February 2023)
        </version>
      </verStmt>
    </citation>
 </docDscr>
  
  <stdyDscr>
    <citation>
      <titlStmt>
        <titl>
			The Swiss Cancer Patient Experiences-2 (SCAPE-2) study
		</titl>
        <IDNo agency="DOI System">
			10.16909-DATASET-38
		</IDNo>
		<subTitl>
			A multicenter cross-sectional survey of patient experiences with cancer care in the French- and German-speaking regions of Switzerland
		</subTitl>
		<parTitl>
			SCAPE-2 : Etude multicentrique transversale sur les expériences des patient·e·s avec les soins oncologiques dans les régions francophones et germanophones en Suisse 
		</parTitl>
      </titlStmt>
      <rspStmt>
         <AuthEnty affiliation="Center for Primary Care and Public Health (Unisanté)">
          Arditi, Chantal (PI)
        </AuthEnty>
		<AuthEnty affiliation="Center for Primary Care and Public Health (Unisanté)">
          Peytremann Bridevaux, Isabelle (coPI)
        </AuthEnty>
		<AuthEnty affiliation="Institute of Higher Education and Research in Healthcare (IUFRS) and Department of Oncology, Lausanne University Hospital">
          Eicher, Manuela (coPI)
        </AuthEnty>
		
		<othId affiliation="Department of Oncology, Luzern Cantonal Hospital" role="Oncology director, responsible for the study site">
			<p>Aebi, Stefan</p>
		</othId>
		<othId affiliation="Department of Oncology, Hôpital du Valais" role="Oncology director, responsible for the study site">
			<p>Anchisi, Sandro</p>
		</othId>
		<othId affiliation="Department of Onco-hematology, Hôpital Fribourgeois" role="Oncology doctor, responsible for the study site">
			<p>Bettini, Adrienne</p>
		</othId>
		<othId affiliation="Center for Primary Care and Public Health (Unisanté)" role="Patient Partner in steering committee">
			<p>Bienvenu, Christine</p>
		</othId>
		<othId affiliation="Department of Oncology, Geneva University Hospitals" role="Onco-hematology director, co-responsible for the study site">
			<p>Chalandon, Yves</p>
		</othId>
		<othId affiliation="Department of Oncology, Geneva University Hospitals" role="Oncology director, responsible for the study site">
			<p>Dietrich, Pierre-Yves</p>
		</othId>
		<othId affiliation="Department of Oncology, Lausanne University Hospital" role="Onco-hematology director, responsible for the study site">
			<p>Duchosal, Michel</p>
		</othId>
		<othId affiliation="Department of Oncology, Zug Cantonal Hospital" role="Oncology director, responsible for the study site">
			<p>Dürr, Donat</p>
		</othId>
		<othId role="Patient Partner in steering committee">
			<p>Ganz-Blättler, Ursula</p>
		</othId>
		<othId role="Completed the questionnaire">
			<p>Patients with cancer</p>
		</othId>
		<othId affiliation="Department of Oncology, Lausanne University Hospital" role="Medical oncology director, responsible for the study site">
			<p>Peters, Solange</p>
		</othId>
		<othId affiliation="Department of Oncology, University Hospital Zurich" role="Oncology director, responsible for the study site">
			<p>Wickj, Andreas</p>
		</othId>
		<othId affiliation="Department of Oncology, Cantonal Hospital of Grisons" role="Oncology director, responsible for the study site">
			<p>Von Moos, Roger</p>
		</othId>
      </rspStmt>
	  
      <prodStmt>
        <copyright>
			(c) 2023, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland
        </copyright>
        <fundAg abbr="SCR" role="Grant no HSR-4946-11-2019">
			Swiss Cancer Research foundation
		</fundAg>
      </prodStmt>
	  
      <distStmt>
		<distrbtr abbr="Unisanté" affiliation="UNIL" URI="https://www.unisante.ch">
			Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland
        </distrbtr>
      </distStmt>
    </citation>
	
    <stdyInfo>
      <subject>
        <keyword>
			Cancer
		</keyword>
		<keyword>
			Switzerland
		</keyword>
		<keyword>
			patient survey
		</keyword>
		<keyword>
			patient-reported experience measure (PREM)
		</keyword>
		<keyword>
			patient satisfaction
		</keyword>
		<keyword>
			quality of care
		</keyword>
		<keyword>
			COVID-19
		</keyword>
      </subject>
      <abstract>
        <![CDATA[
			Collecting patients’ experiences with care provision is essential to evaluate the quality of care in general, and responsiveness of care in particular, one of the core dimensions of high-quality care. After a first study conducted in 2018, we conducted a second study to collect patient experience data. Our main study objective was to explore experiences of care of people treated for any type of cancer in eight hospitals in the French- and German-speaking regions of Switzerland, and to explore whether these experiences differed by linguistic region, hospital, and cancer type.
			
			The Swiss Cancer Patient Experience-2 (SCAPE) was a cross-sectional multicenter survey, conducted between September 2021 and February 2022, among cancer patients diagnosed with any type of cancer from four hospitals in the French-speaking region and from four hospitals in the German-speaking region. Data were collected with a self-administered questionnaire, including questions on experiences of care and the impact of COVID-19 on cancer care and patients as well as socio-demographic and clinical characteristics. Of the 6873 adult patients invited to complete the questionnaire, 3220 patients returned it (47% response rate) and were included in the analyses. 
			
			Patients rated their overall care at 8.9 on average on a 0-10 scale. Overall, experiences of care with diagnostic tests were positive, particularly the waiting time between the prescription of an examination and its completion, the usefulness of the tests performed, the trust in hospital staff and the fact that care was provided with respect and dignity. The experience is less positive with respect to information received at diagnosis, support for short- and long-term side effects of treatment and cancer, information about the impact of cancer on daily activities, difficulty finding a staff member to talk about concerns and fears, financial aspects of the disease, and loved ones’ involvement.
		]]>
      </abstract>
      
	  <sumDscr>
		<collDate date="2021-09-13" event="start" cycle=""/>
        <collDate date="2022-02-28" event="end" cycle="">
		</collDate>	
        <nation abbr="CHE">
			Switzerland
		</nation>
        <geogCover>
			French- and German-speaking regions of Switzerland
		</geogCover>

        <anlyUnit>
			Individual. N=3220
		</anlyUnit>
        <universe>
			Adult patients diagnosed with any type of cancer recruited from four hospitals in the French-speaking region – Lausanne University Hospital (CHUV), Hôpital Fribourgeois (HFR), Geneva University Hospitals (HUG), Hôpital du Valais (HVS) and from four hospitals in the German-speaking region - Cantonal Hospital of Grisons (KSGR), Luzern Cantonal Hospital (LUKS), University Hospital Zurich (USZ), Zug Cantonal Hospital (ZGKS).
		</universe>
		<dataKind>
			Self-reported data collected from paper and online questionnaire
		</dataKind>
      </sumDscr>
    </stdyInfo>
	
    <method>
      <dataColl>
        <sampProc>
			<![CDATA[
				All patients meeting inclusion criteria.
			]]>
        </sampProc>
        <collMode>
			Paper and online questionnaire, self-administered at home. 
		</collMode>
		<resInstru type="Questionnaire">
          <![CDATA[
			SCAPE-2 Questionnaire including 128 closed questions (79 questions on experiences of care; 23 questions on the impact of COVID-19; 12 questions on health status; 14 questions on socio-demographic characteristics) and 3 free-text sections. 
			]]>
        </resInstru>
		<cleanOps>
			<![CDATA[
				Data from paper and online questionnaires were merged after careful verification of all coding. Data were checked for inconsistency (multiple check marks when only one allowed). We also considered hand written comments next to questions to edit the answer if necessary. 
			]]>
        </cleanOps>
		</dataColl>
    </method>
	
    <dataAccs>
	  <useStmt> <!--Informations sur l'utilisation des données-->
		<contact affiliation="Center for Primary Care and Public Health (Unisanté)" email="chantal.arditi@unisante.ch">
			Arditi, Chantal (Principal Investigator)
		</contact>
		<contact affiliation="Center for Primary Care and Public Health (Unisanté)" email="isabelle.peytremann-bridevaux@unisante.ch">
			Peytremann Bridevaux, Isabelle (Co- Principal Investigator)
		</contact>
		<contact affiliation="Institute of Higher Education and Research in Healthcare (IUFRS) and Department of Oncology, Lausanne University Hospital" email="manuela.eicher@chuv.ch">
			Eicher, Manuela (Co- Principal Investigator)
		</contact>
		<contact affiliation="Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland" email="udd.data@unisante.ch">
          Racine, Céline (Repository manager)
        </contact>
		
        <citReq>
			Arditi C, Peytremann Bridevaux I, Eicher M. The Swiss Cancer Patient Experiences-2 (SCAPE-2) study: a multicenter cross-sectional survey of patient experiences with cancer care in the French- and German-speaking regions of Switzerland. Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland. Version 1.0 of the licensed dataset (03/2023), provided by the Unisanté Research Data Repository. DOI:10.16909/DATASET/38 
        </citReq>
		<disclaimer>
          The user of the data acknowledges that the original collector of the data, the authorized distributor of the data, and the relevant funding agency bear no responsibility for use of the data or for interpretations or inferences based upon such uses.
        </disclaimer>
    </useStmt>
	</dataAccs>
  </stdyDscr>
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