{"doc_desc":{"title":"The Swiss Cancer Patient Experiences-2 (SCAPE-2) study","idno":"10.16909-DATASET-38","producers":[{"name":"Center for Primary Care and Public Health (Unisant\u00e9), University of Lausanne, Switzerland","abbreviation":"Unisant\u00e9","affiliation":"","role":"Data publisher"}],"version_statement":{"version":"Version 1.0 (February 2023)","version_date":""}},"study_desc":{"title_statement":{"idno":"10.16909-DATASET-38","title":"The Swiss Cancer Patient Experiences-2 (SCAPE-2) study","sub_title":"A multicenter cross-sectional survey of patient experiences with cancer care in the French- and German-speaking regions of Switzerland","translated_title":"SCAPE-2 : Etude multicentrique transversale sur les exp\u00e9riences des patient\u00b7e\u00b7s avec les soins oncologiques dans les r\u00e9gions francophones et germanophones en Suisse"},"authoring_entity":[{"name":"Arditi, Chantal (PI)","affiliation":"Center for Primary Care and Public Health (Unisant\u00e9)"},{"name":"Peytremann Bridevaux, Isabelle (coPI)","affiliation":"Center for Primary Care and Public Health (Unisant\u00e9)"},{"name":"Eicher, Manuela (coPI)","affiliation":"Institute of Higher Education and Research in Healthcare (IUFRS) and Department of Oncology, Lausanne University Hospital"}],"oth_id":[{"name":"Aebi, Stefan","affiliation":"Department of Oncology, Luzern Cantonal Hospital","email":"","role":"Oncology director, responsible for the study site"},{"name":"Anchisi, Sandro","affiliation":"Department of Oncology, H\u00f4pital du Valais","email":"","role":"Oncology director, responsible for the study site"},{"name":"Bettini, Adrienne","affiliation":"Department of Onco-hematology, H\u00f4pital Fribourgeois","email":"","role":"Oncology doctor, responsible for the study site"},{"name":"Bienvenu, Christine","affiliation":"Center for Primary Care and Public Health (Unisant\u00e9)","email":"","role":"Patient Partner in steering committee"},{"name":"Chalandon, Yves","affiliation":"Department of Oncology, Geneva University Hospitals","email":"","role":"Onco-hematology director, co-responsible for the study site"},{"name":"Dietrich, Pierre-Yves","affiliation":"Department of Oncology, Geneva University Hospitals","email":"","role":"Oncology director, responsible for the study site"},{"name":"Duchosal, Michel","affiliation":"Department of Oncology, Lausanne University Hospital","email":"","role":"Onco-hematology director, responsible for the study site"},{"name":"D\u00fcrr, Donat","affiliation":"Department of Oncology, Zug Cantonal Hospital","email":"","role":"Oncology director, responsible for the study site"},{"name":"Ganz-Bl\u00e4ttler, Ursula","affiliation":"","email":"","role":"Patient Partner in steering committee"},{"name":"Patients with cancer","affiliation":"","email":"","role":"Completed the questionnaire"},{"name":"Peters, Solange","affiliation":"Department of Oncology, Lausanne University Hospital","email":"","role":"Medical oncology director, responsible for the study site"},{"name":"Wickj, Andreas","affiliation":"Department of Oncology, University Hospital Zurich","email":"","role":"Oncology director, responsible for the study site"},{"name":"Von Moos, Roger","affiliation":"Department of Oncology, Cantonal Hospital of Grisons","email":"","role":"Oncology director, responsible for the study site"}],"production_statement":{"copyright":"(c) 2023, Center for Primary Care and Public Health (Unisant\u00e9), University of Lausanne, Switzerland","funding_agencies":[{"name":"Swiss Cancer Research foundation","abbreviation":"SCR","role":"Grant no HSR-4946-11-2019"}]},"distribution_statement":{"distributors":[{"name":"Center for Primary Care and Public Health (Unisant\u00e9), University of Lausanne, Switzerland","abbreviation":"Unisant\u00e9","affiliation":"UNIL","uri":"https:\/\/www.unisante.ch"}]},"study_info":{"keywords":[{"keyword":"Cancer","vocab":"","uri":""},{"keyword":"Switzerland","vocab":"","uri":""},{"keyword":"patient survey","vocab":"","uri":""},{"keyword":"patient-reported experience measure (PREM)","vocab":"","uri":""},{"keyword":"patient satisfaction","vocab":"","uri":""},{"keyword":"quality of care","vocab":"","uri":""},{"keyword":"COVID-19","vocab":"","uri":""}],"abstract":"Collecting patients\u2019 experiences with care provision is essential to evaluate the quality of care in general, and responsiveness of care in particular, one of the core dimensions of high-quality care. After a first study conducted in 2018, we conducted a second study to collect patient experience data. Our main study objective was to explore experiences of care of people treated for any type of cancer in eight hospitals in the French- and German-speaking regions of Switzerland, and to explore whether these experiences differed by linguistic region, hospital, and cancer type.\n\t\t\t\n\t\t\tThe Swiss Cancer Patient Experience-2 (SCAPE) was a cross-sectional multicenter survey, conducted between September 2021 and February 2022, among cancer patients diagnosed with any type of cancer from four hospitals in the French-speaking region and from four hospitals in the German-speaking region. Data were collected with a self-administered questionnaire, including questions on experiences of care and the impact of COVID-19 on cancer care and patients as well as socio-demographic and clinical characteristics. Of the 6873 adult patients invited to complete the questionnaire, 3220 patients returned it (47% response rate) and were included in the analyses. \n\t\t\t\n\t\t\tPatients rated their overall care at 8.9 on average on a 0-10 scale. Overall, experiences of care with diagnostic tests were positive, particularly the waiting time between the prescription of an examination and its completion, the usefulness of the tests performed, the trust in hospital staff and the fact that care was provided with respect and dignity. The experience is less positive with respect to information received at diagnosis, support for short- and long-term side effects of treatment and cancer, information about the impact of cancer on daily activities, difficulty finding a staff member to talk about concerns and fears, financial aspects of the disease, and loved ones\u2019 involvement.","coll_dates":[{"start":"2021-09-13","end":"2022-02-28","cycle":""}],"nation":[{"name":"Switzerland","abbreviation":"CHE"}],"geog_coverage":"French- and German-speaking regions of Switzerland","analysis_unit":"Individual. N=3220","universe":"Adult patients diagnosed with any type of cancer recruited from four hospitals in the French-speaking region \u2013 Lausanne University Hospital (CHUV), H\u00f4pital Fribourgeois (HFR), Geneva University Hospitals (HUG), H\u00f4pital du Valais (HVS) and from four hospitals in the German-speaking region - Cantonal Hospital of Grisons (KSGR), Luzern Cantonal Hospital (LUKS), University Hospital Zurich (USZ), Zug Cantonal Hospital (ZGKS).","data_kind":"Self-reported data collected from paper and online questionnaire"},"method":{"data_collection":{"sampling_procedure":"All patients meeting inclusion criteria.","coll_mode":"Paper and online questionnaire, self-administered at home.","research_instrument":"SCAPE-2 Questionnaire including 128 closed questions (79 questions on experiences of care; 23 questions on the impact of COVID-19; 12 questions on health status; 14 questions on socio-demographic characteristics) and 3 free-text sections.","cleaning_operations":"Data from paper and online questionnaires were merged after careful verification of all coding. Data were checked for inconsistency (multiple check marks when only one allowed). We also considered hand written comments next to questions to edit the answer if necessary."}},"data_access":{"dataset_use":{"contact":[{"name":"Arditi, Chantal (Principal Investigator)","affiliation":"Center for Primary Care and Public Health (Unisant\u00e9)","email":"chantal.arditi@unisante.ch","uri":""},{"name":"Peytremann Bridevaux, Isabelle (Co- Principal Investigator)","affiliation":"Center for Primary Care and Public Health (Unisant\u00e9)","email":"isabelle.peytremann-bridevaux@unisante.ch","uri":""},{"name":"Eicher, Manuela (Co- Principal Investigator)","affiliation":"Institute of Higher Education and Research in Healthcare (IUFRS) and Department of Oncology, Lausanne University Hospital","email":"manuela.eicher@chuv.ch","uri":""},{"name":"Racine, C\u00e9line (Repository manager)","affiliation":"Center for Primary Care and Public Health (Unisant\u00e9), University of Lausanne, Switzerland","email":"udd.data@unisante.ch","uri":""}],"cit_req":"Arditi C, Peytremann Bridevaux I, Eicher M. The Swiss Cancer Patient Experiences-2 (SCAPE-2) study: a multicenter cross-sectional survey of patient experiences with cancer care in the French- and German-speaking regions of Switzerland. Center for Primary Care and Public Health (Unisant\u00e9), University of Lausanne, Switzerland. Version 1.0 of the licensed dataset (03\/2023), provided by the Unisant\u00e9 Research Data Repository. DOI:10.16909\/DATASET\/38","disclaimer":"The user of the data acknowledges that the original collector of the data, the authorized distributor of the data, and the relevant funding agency bear no responsibility for use of the data or for interpretations or inferences based upon such uses."}}},"schematype":"survey"}