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    <citation>
      <titlStmt>
        <titl>
           Trans and Nonbinary Individuals’ Experiences &amp; Challenges with Sex and Gender Identity Documentation in Healthcare Settings in Switzerland
        </titl>
        <subTitl>
           Experiences &amp; challenges of TNB individuals with sex/gender documentation in healthcare
        </subTitl>
        <altTitl>
           GENDER-REACH_TNB_Survey
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		<IDNo>
          10.16909-dataset-71
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  <stdyDscr>
    <citation>
      <titlStmt>
        <titl>
          Trans and Nonbinary Individuals’ Experiences &amp; Challenges with Sex and Gender Identity Documentation in Healthcare Settings in Switzerland
        </titl>
        <subTitl>
          Experiences &amp; challenges of TNB individuals with sex/gender documentation in healthcare
        </subTitl>
        <altTitl>
          GENDER-REACH_TNB_Survey
        </altTitl>
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        <IDNo>
           10.16909-dataset-71
        </IDNo>
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      <rspStmt>
        <AuthEnty affiliation="Department of Epidemiology and Health Systems, Unisanté, University Center for Primary Care and Public Health &amp; University of Lausanne, Lausanne, Switzerland">Chantal Arditi</AuthEnty>

      </rspStmt>
      <prodStmt>
        <producer abbr="SB" affiliation="Department of Epidemiology and Health Systems, Unisanté, University Center for Primary Care and Public Health &amp; University of Lausanne, Lausanne, Switzerland" role="Researcher">Sylvan Berrut</producer>
<producer abbr="LDP" affiliation="Department of Epidemiology and Health Systems, Unisanté, University Center for Primary Care and Public Health &amp; University of Lausanne, Lausanne, Switzerland" role="Researcher">Laura D Perler</producer>
<producer abbr="DC" affiliation="Geneva University Hospitals and University of Geneva" role="Co-PI">Delphine Courvoisier</producer>

        <copyright>
          (c) 2026, Unisanté, Unisanté, University Center for Primary Care and Public Health, Lausanne, Switzerland
        </copyright>
        <software version="1.2" date="2011-01-07">
          Metadata Editor
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        <fundAg abbr="SNSF" role="">Swiss National Science Foundation</fundAg>
<grantNo agency="Swiss National Science Foundation" role="">408340_226943</grantNo>

      </prodStmt>
      <distStmt>
        <contact affiliation="Department of Epidemiology and Health Systems, Unisanté, University Center for Primary Care and Public Health &amp; University of Lausanne, Lausanne, Switzerland" email="gender-reach@unisante.ch" URI="">GENDER-REACH</contact>

      </distStmt>
      <serStmt>
        <serName>
          Other Household Survey [hh/oth]
        </serName>
        <serInfo>
          <![CDATA[]]>
        </serInfo>
      </serStmt>
      <verStmt>
        <version date="2026-08-27">
          <![CDATA[version 2.1: Edited, anonymous dataset for public distribution.]]>
        </version>
        <verResp affiliation=" "/>
        <notes>
          <![CDATA[]]>
        </notes>
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      <subject>
        
        
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      <abstract>
        <![CDATA[This cross-sectional study aimed to examine the experiences of trans and nonbinary (TNB) individuals regarding the documentation and communication of sex and gender identity in healthcare settings in Switzerland. 
Data were collected through an online survey assessing structural factors (documentation accuracy, form inclusivity, ease of change, provider knowledge), interpersonal factors (respectful communication, perceived rejection, breach of confidentiality, medical harm), individual factors (disclosure safety, disclosure of gender identity, negative expectations, non-disclosure behavior), and healthcare avoidance. 
Recruitment was conducted through professional medical organizations (n = 11), LGBTIQ+ community organizations (n = 22), a targeted Instagram campaign led by Unisanté and Transgender Network Switzerland (TGNS), and snowball sampling. Data collection took place from July 10 to September 4, 2025.
The dataset includes responses from 156 participants.]]>
      </abstract>
      <sumDscr>
        <collDate date="2025/07/10" event="start" cycle="" />
<collDate date="2025/09/04" event="end" cycle="" />

        
        <nation abbr="CHE">Switzerland</nation>

        <geogCover>
          <![CDATA[National]]>
        </geogCover>
        <anlyUnit>
          <![CDATA[individuals]]>
        </anlyUnit>
        <universe>
          <![CDATA[The target population included individuals who identify as trans and/or non-binary individuals, as well as intersex individuals who often face similar structural and interpersonal challenges in healthcare, who were 14 years old and older.]]>
        </universe>
        <dataKind>
          Sample survey data [ssd]
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      <notes>
        <![CDATA[1. Screening and transition information: The first section collected data on participants’ sex/gender identity and their transition status.
2. Healthcare use and setting-specific experiences: Participants were asked to report their use of care within the last 12 months in five healthcare settings: 1) primary care, 2) specialized care (e.g., endocrinologist, gynecologist, urologist), 3) emergency care, 4) inpatient care, 5) mental health care (e.g., psychologist, psychiatrist). They were then instructed to select maximum two settings in which they had experiences within the last 12 months. For each of these settings, they were asked to detail their experiences.
3. General experiences in healthcare: Following the setting-specific questions, the survey shifted to general questions about experiences. This included questions about delaying or avoiding needed healthcare, reasons for delaying care, and instances of medical harm in the last 12 months, as well as two free-text questions about positive and negative experiences
4. Preferences and suggestions: the next section asked participants about their preferences for the collection of and access to sex/gender information, and what would make healthcare more inclusive.
5. Gender-Minority Stress and Resilience (GMSR) and other measures: this section included three scales from the GMSR measures (negative expectations, internalized transphobia, non-disclosure behavior) as well as a question on passing, a scale on perceived social support, and the Brief COPE scale on coping strategies.
6. Demographics and health: The final section of the survey collected demographic information and subjective health data.]]>
      </notes>
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    <method>
      <dataColl>
        <dataCollector abbr="REDCap" affiliation="">REDCap</dataCollector>

        <sampProc>
          <![CDATA[Recruitment was facilitated through a collaborative effort involving 11 professional medical organizations and 22 LGBTIQ+ community organizations. Additionally, a targeted social media campaign was carried out on Instagram, spearheaded by Unisanté in partnership with Transgender Network Switzerland (TGNS), the national trans community organization. Further recruitment occurred through snowball sampling.]]>
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          <![CDATA[]]>
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          Internet [int]
        </collMode>
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          <![CDATA[The instrument was available in three languages (English, German, and French). 
The estimated time for completion was between 20 to 35 minutes. 
The questionnaire included 6 sections:
1. Screening and transition information: The first section collected data on participants’ sex/gender identity and their transition status.
2. Healthcare use and setting-specific experiences: Participants were asked to report their use of care within the last 12 months in five healthcare settings: 1) primary care, 2) specialized care (e.g., endocrinologist, gynecologist, urologist), 3) emergency care, 4) inpatient care, 5) mental health care (e.g., psychologist, psychiatrist). They were then instructed to select maximum two settings in which they had experiences within the last 12 months. For each of these settings, they were asked to detail their experiences.
3. General experiences in healthcare: Following the setting-specific questions, the survey shifted to general questions about experiences. This included questions about delaying or avoiding needed healthcare, reasons for delaying care, and instances of medical harm in the last 12 months, as well as two free-text questions about positive and negative experiences
4. Preferences and suggestions: the next section asked participants about their preferences for the collection of and access to sex/gender information, and what would make healthcare more inclusive.
5. Gender-Minority Stress and Resilience (GMSR) and other measures: this section included three scales from the GMSR measures (negative expectations, internalized transphobia, non-disclosure behavior) as well as a question on passing, a scale on perceived social support, and the Brief COPE scale on coping strategies.
6. Demographics and health: The final section of the survey collected demographic information and subjective health data.]]>
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      </notes>
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          <![CDATA[]]>
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          <![CDATA[]]>
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        <contact affiliation="Unisanté, University Center for Primary Care and Public Health &amp; University of Lausanne, Lausanne, Switzerland" email="udd.data@unisante.ch" URI="https://www.unisante.ch/fr/formation-recherche/bibliotheque">Documentation and data unit (UDD)</contact>

        <citReq>
          <![CDATA[Arditi C, Berrut S, Perler L D, Courvoisier D. Trans and Nonbinary Individuals’ Experiences & Challenges with Sex and Gender Identity Documentation in Healthcare Settings in Switzerland. Unisanté, Center for Primary Care and Public Health & University of Lausanne, Lausanne, Switzerland. Version 2.1: Edited, anonymous dataset for public distribution. (08/2026), provided by the Unisanté Research Data Repository. DOI:10.16909/DATASET/71]]>
        </citReq>
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          <![CDATA[Licensed datasets, accessible under conditions and following review.]]>
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          <![CDATA[]]>
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