{"doc_desc":{"title":"Trans and Nonbinary Individuals\u2019 Experiences & Challenges with Sex and Gender Identity Documentation in Healthcare Settings in Switzerland","idno":"10.16909-dataset-71"},"study_desc":{"title_statement":{"idno":"10.16909-dataset-71","title":"Trans and Nonbinary Individuals\u2019 Experiences & Challenges with Sex and Gender Identity Documentation in Healthcare Settings in Switzerland","sub_title":"Experiences & challenges of TNB individuals with sex\/gender documentation in healthcare","alternate_title":"GENDER-REACH_TNB_Survey"},"authoring_entity":[{"name":"Chantal Arditi","affiliation":"Department of Epidemiology and Health Systems, Unisant\u00e9, University Center for Primary Care and Public Health & University of Lausanne, Lausanne, Switzerland"}],"production_statement":{"producers":[{"name":"Sylvan Berrut","abbr":"SB","affiliation":"Department of Epidemiology and Health Systems, Unisant\u00e9, University Center for Primary Care and Public Health & University of Lausanne, Lausanne, Switzerland","role":"Researcher"},{"name":"Laura D Perler","abbr":"LDP","affiliation":"Department of Epidemiology and Health Systems, Unisant\u00e9, University Center for Primary Care and Public Health & University of Lausanne, Lausanne, Switzerland","role":"Researcher"},{"name":"Delphine Courvoisier","abbr":"DC","affiliation":"Geneva University Hospitals and University of Geneva","role":"Co-PI"}],"copyright":"(c) 2026, Unisant\u00e9, Unisant\u00e9, University Center for Primary Care and Public Health, Lausanne, Switzerland","funding_agencies":[{"name":"Swiss National Science Foundation","abbr":"SNSF","role":""}],"grant_no":"408340_226943"},"distribution_statement":{"contact":[{"name":"GENDER-REACH","affiliation":"Department of Epidemiology and Health Systems, Unisant\u00e9, University Center for Primary Care and Public Health & University of Lausanne, Lausanne, Switzerland","email":"gender-reach@unisante.ch","uri":""}]},"series_statement":{"series_name":"Other Household Survey [hh\/oth]"},"version_statement":{"version":"version 2.1: Edited, anonymous dataset for public distribution.","version_date":"2026-08-27"},"study_info":{"abstract":"This cross-sectional study aimed to examine the experiences of trans and nonbinary (TNB) individuals regarding the documentation and communication of sex and gender identity in healthcare settings in Switzerland. \nData were collected through an online survey assessing structural factors (documentation accuracy, form inclusivity, ease of change, provider knowledge), interpersonal factors (respectful communication, perceived rejection, breach of confidentiality, medical harm), individual factors (disclosure safety, disclosure of gender identity, negative expectations, non-disclosure behavior), and healthcare avoidance. \nRecruitment was conducted through professional medical organizations (n = 11), LGBTIQ+ community organizations (n = 22), a targeted Instagram campaign led by Unisant\u00e9 and Transgender Network Switzerland (TGNS), and snowball sampling. Data collection took place from July 10 to September 4, 2025.\nThe dataset includes responses from 156 participants.","coll_dates":[{"start":"2025\/07\/10","end":"2025\/09\/04","cycle":""}],"nation":[{"name":"Switzerland","abbreviation":"CHE"}],"geog_coverage":"National","analysis_unit":"individuals","universe":"The target population included individuals who identify as trans and\/or non-binary individuals, as well as intersex individuals who often face similar structural and interpersonal challenges in healthcare, who were 14 years old and older.","data_kind":"Sample survey data [ssd]","notes":"1. Screening and transition information: The first section collected data on participants\u2019 sex\/gender identity and their transition status.\n2. Healthcare use and setting-specific experiences: Participants were asked to report their use of care within the last 12 months in five healthcare settings: 1) primary care, 2) specialized care (e.g., endocrinologist, gynecologist, urologist), 3) emergency care, 4) inpatient care, 5) mental health care (e.g., psychologist, psychiatrist). They were then instructed to select maximum two settings in which they had experiences within the last 12 months. For each of these settings, they were asked to detail their experiences.\n3. General experiences in healthcare: Following the setting-specific questions, the survey shifted to general questions about experiences. This included questions about delaying or avoiding needed healthcare, reasons for delaying care, and instances of medical harm in the last 12 months, as well as two free-text questions about positive and negative experiences\n4. Preferences and suggestions: the next section asked participants about their preferences for the collection of and access to sex\/gender information, and what would make healthcare more inclusive.\n5. Gender-Minority Stress and Resilience (GMSR) and other measures: this section included three scales from the GMSR measures (negative expectations, internalized transphobia, non-disclosure behavior) as well as a question on passing, a scale on perceived social support, and the Brief COPE scale on coping strategies.\n6. Demographics and health: The final section of the survey collected demographic information and subjective health data."},"method":{"data_collection":{"data_collectors":[{"name":"REDCap","abbr":"REDCap","role":"","affiliation":""}],"sampling_procedure":"Recruitment was facilitated through a collaborative effort involving 11 professional medical organizations and 22 LGBTIQ+ community organizations. Additionally, a targeted social media campaign was carried out on Instagram, spearheaded by Unisant\u00e9 in partnership with Transgender Network Switzerland (TGNS), the national trans community organization. Further recruitment occurred through snowball sampling.","coll_mode":["Internet [int]"],"research_instrument":"The instrument was available in three languages (English, German, and French). \nThe estimated time for completion was between 20 to 35 minutes. \nThe questionnaire included 6 sections:\n1. Screening and transition information: The first section collected data on participants\u2019 sex\/gender identity and their transition status.\n2. Healthcare use and setting-specific experiences: Participants were asked to report their use of care within the last 12 months in five healthcare settings: 1) primary care, 2) specialized care (e.g., endocrinologist, gynecologist, urologist), 3) emergency care, 4) inpatient care, 5) mental health care (e.g., psychologist, psychiatrist). They were then instructed to select maximum two settings in which they had experiences within the last 12 months. For each of these settings, they were asked to detail their experiences.\n3. General experiences in healthcare: Following the setting-specific questions, the survey shifted to general questions about experiences. This included questions about delaying or avoiding needed healthcare, reasons for delaying care, and instances of medical harm in the last 12 months, as well as two free-text questions about positive and negative experiences\n4. Preferences and suggestions: the next section asked participants about their preferences for the collection of and access to sex\/gender information, and what would make healthcare more inclusive.\n5. Gender-Minority Stress and Resilience (GMSR) and other measures: this section included three scales from the GMSR measures (negative expectations, internalized transphobia, non-disclosure behavior) as well as a question on passing, a scale on perceived social support, and the Brief COPE scale on coping strategies.\n6. Demographics and health: The final section of the survey collected demographic information and subjective health data.","sources":[{"name":"","origin":"","characteristics":""}]}},"data_access":{"dataset_use":{"conf_dec":[{"txt":"","required":"yes","form_no":"","form_uri":""}],"contact":[{"name":"Documentation and data unit (UDD)","affiliation":"Unisant\u00e9, University Center for Primary Care and Public Health & University of Lausanne, Lausanne, Switzerland","email":"udd.data@unisante.ch","uri":"https:\/\/www.unisante.ch\/fr\/formation-recherche\/bibliotheque"}],"cit_req":"Arditi C, Berrut S, Perler L D, Courvoisier D. Trans and Nonbinary Individuals\u2019 Experiences & Challenges with Sex and Gender Identity Documentation in Healthcare Settings in Switzerland. Unisant\u00e9, Center for Primary Care and Public Health & University of Lausanne, Lausanne, Switzerland. Version 2.1: Edited, anonymous dataset for public distribution. (08\/2026), provided by the Unisant\u00e9 Research Data Repository. DOI:10.16909\/DATASET\/71","conditions":"Licensed datasets, accessible under conditions and following review."}}},"schematype":"survey","tags":[{"tag":"Human"}]}