Unisanté Data repository

An Online Microdata Catalog

Search in 63 datasets

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Genetic Cascade Screening for Familial Hypercholesterolemia

Familial hypercholesterolemia is a common genetic disorder associated with premature cardiovascular disease. Genetic cascade screening is recommended but remains underused due to privacy laws that prevent clinicians from directly contacting at-risk relatives.
This open-label, multicenter, implementation randomized clinical trial (CATCH) was conducted between November 1, 2020, and October 31, 2023, at 7 cardiovascular prevention or lipid clinics across Switzerland.
In this randomized clinical trial of patient-mediated genetic cascade screening supported by a web-based platform, participation in genetic testing and detection of familial hypercholesterolemia was increased compared with usual care. These results suggest that the use of digital communication tools enhanced the reach and effectiveness of genetic screening programs within privacy-regulated health systems.

Trans and Nonbinary Individuals’ Experiences & Challenges with Sex and Gender Identity Documentation in Healthcare Settings in Switzerland

This cross-sectional study aimed to examine the experiences of trans and nonbinary (TNB) individuals regarding the documentation and communication of sex and gender identity in healthcare settings in Switzerland. Data were collected through an online survey assessing structural factors (documentation accuracy, form inclusivity, ease of change, provider knowledge), interpersonal factors (respectful communication, perceived rejection, breach of confidentiality, medical harm), individual factors (disclosure safety, disclosure of gender identity, negative expectations, non-disclosure behavior), and healthcare avoidance. Recruitment was conducted through professional medical organizations (n = 11), LGBTIQ+ community organizations (n = 22), a targeted Instagram campaign led by Unisanté and Transgender Network Switzerland (TGNS), and snowball sampling. Data collection took place from July 10 to September 4, 2025. The dataset includes responses from 156 participants.

Population-based Night Work Exposure Assessment Using Swiss Labour Force Survey Data (1991–2024)

This project aims to develop, validate, and disseminate a Job-Exposure Matrix (JEM) for night work exposure (NW‑JEM) to support epidemiological research and occupational health surveillance. The JEM provides standardized, reproducible estimates of the index of exposure to night work across occupational groups in Switzerland.

Digital Patient Decision Aids for Cancer Prevention in Socially Disadvantaged Women

This scoping review aims to gather and analyze existing digital Patient Decision Aids (PtDAs) for cancer prevention targeting socially disadvantaged women.

Design of a Patient Education Leaflet for Preventing Inappropriate Opioid Analgesics Use in Swiss Community Pharmacies

How to request data

Datasets are available under various modalities.

Anonymous data are available in Open Access under a Creative Common licence.
Coded, pseudonymized and deidentified data are available under restricted access. Most of them are regulated by the Human Research Act (HRA), therefore an approval of your project must be submitted to your cantonal ethics committee before requesting the data (HRO, chap. 3). Details are available on the study webpage.

To get access to data, the following procedure must be followed:

Create an account (Login → Register)
Go to the Data Catalog and click on the study of interest
Once on the study page, click on the tab Data access
For open access datasets : accept the conditions and download the data
For restricted datasets : fill in the application form and submit.

Important: Before submitting a request, please check whether the data is at all useful for your project. The codebooks with the corresponding information are filed under Documentation and do not require registration.