The Swiss Cancer Patient Experiences-2 (SCAPE-2) study, A multicenter cross-sectional survey of patient experiences with cancer care in the French- and German-speaking regions of Switzerland
Switzerland, 2021 - 2022
Arditi, Chantal (PI), Peytremann Bridevaux, Isabelle (coPI), Eicher, Manuela (coPI)
Created on
February 16, 2023
Last modified
March 02, 2023
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Identification
Survey ID Number
10.16909-DATASET-38
Title
The Swiss Cancer Patient Experiences-2 (SCAPE-2) study, A multicenter cross-sectional survey of patient experiences with cancer care in the French- and German-speaking regions of Switzerland
Subtitle
A multicenter cross-sectional survey of patient experiences with cancer care in the French- and German-speaking regions of Switzerland
Translated Title
SCAPE-2 : Etude multicentrique transversale sur les expériences des patient·e·s avec les soins oncologiques dans les régions francophones et germanophones en Suisse
Country
| Name | Country code |
|---|---|
| Switzerland | CHE |
Abstract
Collecting patients’ experiences with care provision is essential to evaluate the quality of care in general, and responsiveness of care in particular, one of the core dimensions of high-quality care. After a first study conducted in 2018, we conducted a second study to collect patient experience data. Our main study objective was to explore experiences of care of people treated for any type of cancer in eight hospitals in the French- and German-speaking regions of Switzerland, and to explore whether these experiences differed by linguistic region, hospital, and cancer type.
The Swiss Cancer Patient Experience-2 (SCAPE) was a cross-sectional multicenter survey, conducted between September 2021 and February 2022, among cancer patients diagnosed with any type of cancer from four hospitals in the French-speaking region and from four hospitals in the German-speaking region. Data were collected with a self-administered questionnaire, including questions on experiences of care and the impact of COVID-19 on cancer care and patients as well as socio-demographic and clinical characteristics. Of the 6873 adult patients invited to complete the questionnaire, 3220 patients returned it (47% response rate) and were included in the analyses.
Patients rated their overall care at 8.9 on average on a 0-10 scale. Overall, experiences of care with diagnostic tests were positive, particularly the waiting time between the prescription of an examination and its completion, the usefulness of the tests performed, the trust in hospital staff and the fact that care was provided with respect and dignity. The experience is less positive with respect to information received at diagnosis, support for short- and long-term side effects of treatment and cancer, information about the impact of cancer on daily activities, difficulty finding a staff member to talk about concerns and fears, financial aspects of the disease, and loved ones’ involvement.
The Swiss Cancer Patient Experience-2 (SCAPE) was a cross-sectional multicenter survey, conducted between September 2021 and February 2022, among cancer patients diagnosed with any type of cancer from four hospitals in the French-speaking region and from four hospitals in the German-speaking region. Data were collected with a self-administered questionnaire, including questions on experiences of care and the impact of COVID-19 on cancer care and patients as well as socio-demographic and clinical characteristics. Of the 6873 adult patients invited to complete the questionnaire, 3220 patients returned it (47% response rate) and were included in the analyses.
Patients rated their overall care at 8.9 on average on a 0-10 scale. Overall, experiences of care with diagnostic tests were positive, particularly the waiting time between the prescription of an examination and its completion, the usefulness of the tests performed, the trust in hospital staff and the fact that care was provided with respect and dignity. The experience is less positive with respect to information received at diagnosis, support for short- and long-term side effects of treatment and cancer, information about the impact of cancer on daily activities, difficulty finding a staff member to talk about concerns and fears, financial aspects of the disease, and loved ones’ involvement.
Kind of Data
Self-reported data collected from paper and online questionnaire
Unit of Analysis
Individual. N=3220
Scope
Keywords
| Keyword |
|---|
| Cancer |
| Switzerland |
| patient survey |
| patient-reported experience measure (PREM) |
| patient satisfaction |
| quality of care |
| COVID-19 |
Coverage
Geographic Coverage
French- and German-speaking regions of Switzerland
Universe
Adult patients diagnosed with any type of cancer recruited from four hospitals in the French-speaking region – Lausanne University Hospital (CHUV), Hôpital Fribourgeois (HFR), Geneva University Hospitals (HUG), Hôpital du Valais (HVS) and from four hospitals in the German-speaking region - Cantonal Hospital of Grisons (KSGR), Luzern Cantonal Hospital (LUKS), University Hospital Zurich (USZ), Zug Cantonal Hospital (ZGKS).
Producers and sponsors
Primary investigators
| Name | Affiliation |
|---|---|
| Arditi, Chantal (PI) | Center for Primary Care and Public Health (Unisanté) |
| Peytremann Bridevaux, Isabelle (coPI) | Center for Primary Care and Public Health (Unisanté) |
| Eicher, Manuela (coPI) | Institute of Higher Education and Research in Healthcare (IUFRS) and Department of Oncology, Lausanne University Hospital |
Funding Agency/Sponsor
| Name | Abbreviation | Role |
|---|---|---|
| Swiss Cancer Research foundation | SCR | Grant no HSR-4946-11-2019 |
Other Identifications/Acknowledgments
| Name | Affiliation | Role |
|---|---|---|
| Aebi, Stefan | Department of Oncology, Luzern Cantonal Hospital | Oncology director, responsible for the study site |
| Anchisi, Sandro | Department of Oncology, Hôpital du Valais | Oncology director, responsible for the study site |
| Bettini, Adrienne | Department of Onco-hematology, Hôpital Fribourgeois | Oncology doctor, responsible for the study site |
| Bienvenu, Christine | Center for Primary Care and Public Health (Unisanté) | Patient Partner in steering committee |
| Chalandon, Yves | Department of Oncology, Geneva University Hospitals | Onco-hematology director, co-responsible for the study site |
| Dietrich, Pierre-Yves | Department of Oncology, Geneva University Hospitals | Oncology director, responsible for the study site |
| Duchosal, Michel | Department of Oncology, Lausanne University Hospital | Onco-hematology director, responsible for the study site |
| Dürr, Donat | Department of Oncology, Zug Cantonal Hospital | Oncology director, responsible for the study site |
| Ganz-Blättler, Ursula | Patient Partner in steering committee | |
| Patients with cancer | Completed the questionnaire | |
| Peters, Solange | Department of Oncology, Lausanne University Hospital | Medical oncology director, responsible for the study site |
| Wickj, Andreas | Department of Oncology, University Hospital Zurich | Oncology director, responsible for the study site |
| Von Moos, Roger | Department of Oncology, Cantonal Hospital of Grisons | Oncology director, responsible for the study site |
Sampling
Sampling Procedure
All patients meeting inclusion criteria.
Data Collection
Dates of Data Collection
| Start | End |
|---|---|
| 2021-09-13 | 2022-02-28 |
Data Collection Mode
Paper and online questionnaire, self-administered at home.
Questionnaires
Questionnaires
SCAPE-2 Questionnaire including 128 closed questions (79 questions on experiences of care; 23 questions on the impact of COVID-19; 12 questions on health status; 14 questions on socio-demographic characteristics) and 3 free-text sections.
Data Processing
Data Editing
Data from paper and online questionnaires were merged after careful verification of all coding. Data were checked for inconsistency (multiple check marks when only one allowed). We also considered hand written comments next to questions to edit the answer if necessary.
Access policy
Access authority
| Name | Affiliation | |
|---|---|---|
| Arditi, Chantal (Principal Investigator) | Center for Primary Care and Public Health (Unisanté) | chantal.arditi@unisante.ch |
| Peytremann Bridevaux, Isabelle (Co- Principal Investigator) | Center for Primary Care and Public Health (Unisanté) | isabelle.peytremann-bridevaux@unisante.ch |
| Eicher, Manuela (Co- Principal Investigator) | Institute of Higher Education and Research in Healthcare (IUFRS) and Department of Oncology, Lausanne University Hospital | manuela.eicher@chuv.ch |
| Racine, Céline (Repository manager) | Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland | udd.data@unisante.ch |
Citation requirements
Arditi C, Peytremann Bridevaux I, Eicher M. The Swiss Cancer Patient Experiences-2 (SCAPE-2) study: a multicenter cross-sectional survey of patient experiences with cancer care in the French- and German-speaking regions of Switzerland. Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland. Version 1.0 of the licensed dataset (03/2023), provided by the Unisanté Research Data Repository. DOI:10.16909/DATASET/38
Disclaimer and copyrights
Disclaimer
The user of the data acknowledges that the original collector of the data, the authorized distributor of the data, and the relevant funding agency bear no responsibility for use of the data or for interpretations or inferences based upon such uses.
Copyright
(c) 2023, Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland
Metadata production
DDI Document ID
10.16909-DATASET-38
Producers
| Name | Abbreviation | Role |
|---|---|---|
| Center for Primary Care and Public Health (Unisanté), University of Lausanne, Switzerland | Unisanté | Data publisher |
DDI Document version
Version 1.0 (February 2023)